Daily itchy legs

MCTD has its own unique set of issues.  I mean, do I have lupus, Sjogren’s, RA, asthma or something else? The answer is yes.  Sjogren’s takes up 3 years to diagnose.  Looking back, my symptoms began as a child and culiminated six years ago.  But, each time, bandaids were put in place via medication.  It has not been until these last few years did doctors look at the family, medical history and symptoms as a whole.

That is besides the point…I wanted to address a symptom that can be attributed to any one of the conditions I listed above.  After some research, I am not any closer to an answer, but I am confident that I will survive.

For about 4 years now, every evening I have itchy legs.  Sometimes it is so bad, I scratch them open.  I first thought this was due to not shaving my legs every day.  I figured oh, well.  Deal with it.  Then when I was diagnosed with unspecified celiac condition, I thought, great – No wheat, no itching.  It did help and wheat is a major trigger.  But, eventually the itching returned.  I figured it was the excessive chlorine in the Hialeah water when I take a bath.  I tried warm baths, hot baths and even tepid baths and showers to alleviate the itchy legs with a charcoal filter.  No use.  I have even gone completely organic for my body soaps and shampoos with non processed ingredients.  Still itchy.  The heavy steriods I was on last year at this time did lower the itching for quite a while.  Now that I am down to 5 mg and trying to get back off, itching has returned.  My sister even sent me a grounding kit to help with my symptoms.  I will be honest, it has helped with my arthritus symptoms and I have not been as sick with the grounding daily.  It has not helped with the itching.

I got fed up last week and decided to do some serious research on this.  Some of my itching is allergy related and is greatly increased when I eat or interact with an irritant.  But, the daily itching at a specific time of day is more related with auto immune disorders.  I wish I had known this 4 years ago.  It even goes along with diabetes (which I do not have, yet).  The remedies vary, but mostly include steriods (which I am trying to get off of).  Sjogren’s has the dry skin, so heavy creams help a little.  I choose ones that are all natural (unprocessed oils) and chamomile or lavendar scented.  Lupus has rashes in general and RA has psoriasis (another rash affliction).  So, pick your problem, and it has a rash or itch to go with it.

What has started new is that when I do itch, where ever I itch, it gets bumpy like hives,  Also, the itch is random and travels from part of my body to another instantly.  I have been told that that is my body doing a nerve self check.    I don’t believe that.  One school of thought with regards to the auto immune disorder is that maybe I am always itchy, but in the evening when I relax, I notice it more and therefore distracted by it more.

I have also noted that work stress has started to make the rashes and itchies worse.  Today my neck broke out in red and I felt like it had a 100 mosquito bites on it after being stressed by an event at work.  I refused to scratch and it calmed down after I relaxed.  I find that drinking plenty of liquids (I prefer tea with its natural respiratory affects) seems to help a little during the day.

I guess what I am stating is that if you are experiencing itching with MCTD, make a note of it, tell your doctor and take care of yourself.

Doing the anti-inflammatory diet has helped me immensely.  It hasn’t helped the itching yet, but that may lessen as I continue to get rid of weight.  I do notice that my hips don’t ache, my neck does not ache and I am not as puffy as I was a month ago.  All I can say, is try it.  You might just feel better.  Do I miss these foods, heck ya!  Some foods just taste better with tomatoe sauce, cream  or peppers in them.   But, I have found a new love in plain old fresh ground black pepper.

I am grateful to God for giving the courage of a friend to refer this diet to me.  May you find your well spring of endurance with God and encouragement with friends.

February Check – in

I promised to check back with you regarding the Whole30 eating plan after a month.  Well…..I have removed 7 pounds and my clothes are starting to get looser.  I still have a long way to go.  But, I have decided to continue the Nightshade avoidance eating plan for another 30 days.  I am adding back honey and white potatoes this week.

The biggest thing I have noticed was the realization of how much sugar I was pumping into my body.  My arthritic symptoms caused by my condition have lowered immensely with avoiding nightshade vegetables.  If you are interested here is the link http://whole30.com .  There is a tab that has their shopping list downloads and shorter version of the program.  You do not need to buy anything from them.  You just need to buy what is on the shopping list.  I have even discovered Pan de Yuca (aka Pan de Bono) as a nice substitute when I need to chew some bread.

I am still doing the 10 minute yoga morning stretch each day.  I try to more yoga in the afternoons,  giving yoga a rest on the weekends.  I have increased my walking.  This is due to the fact that a charity purchased for me the portable oxygen concentrator (poc) I needed to get out of these four walls.   I have used it twice for walks with the dog and used it all day Sunday at the food bank I volunteer at.  It was so nice not to have coughing attacks while bagging the food.  It was even nicer to feel somewhat energetic by the end of the day instead of extremely fatigued.   I plan on taking the poc to church again this week along to a wedding the week after.  I am curious to see peoples reactions to me with it.  At the food bank, their only concern was that it was helping me.  It was.  But they have watched my health deteriorate considerably over the last three years.  The wedding will my first evening adventure in over a year.

The only bad thing is that since it has not really rained in almost two weeks, my coughing has increased again.  It is not as phlegmy as before, but it still tires me out.

I have several specialist visits in the next 30 days.  I will check back with you the beginning of March.

I am thankful for each day God grants me.