I ended April with the rheumatologist and started May with the pulmonologist. So, here is what was said…
I have unspecified/metabolic arthritis and Fibromyalgia in addition to my other issues. RA doctor wants to start me on retuxin drip, pulmonologist does not. So, in order to decide, a few tests have been ordered to see where my lungs and oxygen processing stand. That was the bad news.
Good news…my lung capacity has gone up again and my diffusion rate has gotten better also. The pulmonologist doesn’t want to add any medications since it seems I am still recovering some lung function. My echocardiogram came back that my heart is normal and pulmonary pressure is normal. (Three cheers for that.) (Now I just have to fight with the insurance company to get them to cover it.)
So, where do I go from here. Well……I have saved up some money this year to cover the out-of-pocket cost on a sleep study. So, that has been ordered. Unfortunately I can’t get into see the sleep specialist for a primary physical to do it until September 4th. Also at CT has been requested again. Let’s see if the insurance will allow it this time. I warned the doctor that he would have to fight with the insurance to get it approved. It is scheduled in October before I go back to see the pulmonologist. I am hoping that God will allow me to get the sleep study before I return also.
In the mean time, I will use the oxygen at night if needed. It seems that I may not need it anymore. But, the sleep study will confirm that.
I continue with the reflexology massages. I understand now where the fibromyalgia fits in. Everywhere the masseuse touched, I hurt. I still left feeling better than I did going in. I have moved this treatment up to once a month. Honestly, if I could afford it, I would go every week.
I continue with my self-care of a pedicure and manicure once a month. I have additionally started a weight program by Omada. I am a little over a week into it. It includes several supports, apps and a website that provides tracking and encouragement. I will get back to you on its success. This is covered by the insurance supposedly. I continue with morning yoga during the week. (Hey, I can almost put my heel on the floor in downward dog!)
I am continuing to work, even though some days the pain has started to interfere. I want to stay active and be involved outside of my four walls. Volunteering Sundays at the food pantry takes my eyes off of my problems and allows me to share my perseverance.
Overall, I am pleased on one hand and dismayed on another. I need to do some more research on retuxin before I add that to my myriad of medications.
In the mean time, I know God has me firmly in his hands. There is a reason for this, even if I am only to be a role model to you.