Is it Lupus or Not?

Well, still not gotten a final word, but getting closer.  I spent over an hour with the rheumatoid specialist going over every little detail to determine if what was happening was a symptom or not.  After about an hour and some diagnostic tests, the doc said it looks like Sjorgren’s Syndrome.  Just to make sure he has ordered some special labs for confirmation.  It looks like my body may have been attacking itself for over 4 years now.  It just took the forever chest cold to bring everything together in a whole overview.  They syndrome is similar to lupus, so it is easy to misdiagnos.

The doctor said he would be speaking to my pulmonologist in the next week along with a memo suggesting a treatment plan after the labs come back.  He said he would follow up with me via phone next Friday.  He did order a special lab that has to be sent to California.  I told him that I couldn’t afford it if the insurance didn’t cover it.  He said that he would make sure the insurance covered it.  I sure hope so.

He even gave me a homework assignment to look up the syndrome and the medications he put on paper for me.  He said that way I will be prepared when I see the pulmonologist in two weeks and be able to tell him which medication may be best.  He did state that he would work closely with the pulmonologist to make sure only one doctor is overseeing all the medication and treatment.

I told him about Daisy and showed him a picture.  We had happened to be talking about my decrease in exercising is how she came up.  He showed me a picture of his maltipoo and his pug.

So, at this point, I am neither happy or sad.  Just in limbo emotional wise.  I saw a video on Sjogrens.org that totally explained all my symptoms!!!  Feel free to explore the website.  All my mysterious rashes, fevers, malaise, fatigue, coughing, eye ulcers, left leg motion loss, and more are explained now.  Even the afternoon brain fog that I thought was a product of lack of oxygen is also part of the syndrome.

I will tell you to avoid the Quest Labs at UM though.  The lady was in a rush and butchered my arm.  I know the one over by Chuckee Cheese in Hialeah is a pain, but their techs are easier on the arm.

So, we end on a flat note.  Neither good, nor bad.

Closing Pillow thought…. Psalm 89 – You rule the raging sea; when its waves rise, you still them. vs 9 (NIV)