Update 1.1

Yes, I am trying to be a comedian by using computer lingo for my update.  I am trying to fight off the abyss that yawns before me of depression.

So, a friend went with me to the doctor yesterday since my husband “wasn’t feeling well”.  He is never feeling well.  He is mentally ill.  That is besides the point.  I just had to throw that out there.

Pulmonologist does not agree with rheumatologist about diagnosis.  He thinks that there is more going on with me than Sjogren’s Syndrome.  Even though sjogren’s contains everything I am experiencing.  I still have interstitial lung disease, but they added connective tissue disorder.  Whoop de du!  But, he did agree about the treatment plan.  Today I started generic versions of Cellcept and prednisone.  The prednisone will be tapered off over a period of time and the cellcept will be increased.  I must have monthly labs to make sure I am not having any additional infections or unusual blood counts.  I go back in four weeks for a follow-up and possibly a change up in medication.  He did mention that if I do not get better, the chemo therapy route may be the next course of action.  I really don’t want that.  The good news is that if this works, he might take me off of some of my asthma medications that do not seem to be helping.  In fact, they may not be working at all.

My sister has sent me earthing cuffs and the book that goes with it.   It is supposed to help with inflammation which my body seems to have plenty of.  She has been doing it for three months and has been able to cut back on her amount of arthritis medication.

I will need to drink even more water than I am already.  What else is new?  Watch my weight even closer due to the steroids.  So I might want to back off on some of the candy I munch.  Having a gluten free diet is a great help.  That already is one of the things that all the websites have said is a great help with any of these conditions. Wheat increases inflammation, especially in the digestive track.

Totally off the subject – One of my friends has become soy sensitive.  Like super extra sensitive.  I am helping her go through the detox time that happens when you drastically change your diet.  It takes about  a month as you experiment with what you can and can not get away with.  She has also decided to go gluten free also to see if it will help with another condition she has.   Her husband and I are co-workers so when she has questions, she uses him as a messenger.  I don’t mind.  If I can help guide someone to being healthier.  Wonderful.  It is an expensive adventure to find gluten free and soy free products. They are out there, but at places like Whole Foods, Trader Joes and Fresh Market.  You pay the price also.

Let’s end this post with some prayer.  Close your eyes and thank God for this day and time.  I will be okay with or without this condition.  As He walks holding me.

Psalm 100:3  Know that the LORD, he is God!  It is He who made us, and we are his; we are his people, and the sheep of his pasture.